|Amanda and Brain, she adores her big brother. Brian helps with|
the girls so mommy can get away, or just read a book.
Monday, March 26, 2012
Saturday, July 23, 2011
Saturday, March 26, 2011
Saturday, February 26, 2011
Friday, June 25, 2010
Our little waif has changed a lot, but it happened so gradually, we did not notice, now all of a sudden we are seeing her as a different little girl. One major change is a little pot belly, oh my, who would have ever thought skinny Amanda would get a belly? She is very strong though, little stinker does a Pilates-like abdominal move hundreds of times a day, I could never do it like she does. It amazes everyone. LOL She actually moves constantly, either waving objects around, or sliding them on the floor, rocking on the dog, or trying to walk across the floor, she rarely sits still. I think I would cease to have a weight problem if I did everything she did all day.
Saturday, January 9, 2010
She loves to sit in that spot above, she scoots right over there and sits and laughs and plays. The cats go over to her and sit with her. It is partly the sunlight that streams in there, but I also think she likes the dirt!
Carotenemia is a benign condition most commonly occurring in vegetarians and young children. Carotenemia is more easily appreciated in light-complexioned people, and it may present chiefly as an orange discolouration of the palms and the soles in more darkly pigmented persons. Carotenemia does not cause selective orange discoloration of the conjunctiva of the eyes (orange coloration over the sclera), and thus is usually easy to distinguish from the yellowing of the skin caused by bile pigments, in states of jaundice.
Amanda is changing a little every day, people notice she is friendlier, laughs more, and self stims less. She surprises us daily, and it is very heartening to see her opening up more. I know adoption is hard on our kids, so many stressful changes, but I think they show remarkable resilience considering.
Tuesday, October 13, 2009
They have a new website, guess who is listed in their success stories? http://www.giftofadoption.org/success/familyStories.html Yep, our Amanda!
If you have extra money for donations this year, consider sending some their way, they help hundreds of families realize their dreams of adoption, families like ours!
Thursday, September 17, 2009
Actually she has made quite a few gains in her development and we are so happy to see these positive changes.
She is beginning to play with toys, not just wiggle them, but to look at them and explore them and turn pages of books. Her self-awareness is increasing daily too. I believe it is from spending the summer in the pool and getting all that sensory feedback, but she also seems to trust us more.
Thursday, July 16, 2009
SO now we move forward, "she is not terminal for heavens sakes", that is what I told myself as I kicked myself in the butt, "time to move on Kris".
Last night was HOT, we were all uncomfortable and no one was falling asleep, Julia was restless, Meghan was too, and Amanda and Kara were in the cribs playing at midnight. Amanda, giggling her head off and having so much fun, we had to go and see what she was doing. She was just plain happy, she is a relatively happy little girl, and she engages in simple pleasures that bring her tremendous joy. Rocking on a toy, playing in the water, being held and tickled.
We think she loves us, we love her, and we will all help her as much as we can. We are used to the scenic route in our lives journey, this is just another trip on a road we have not travelled. There is always something exciting about going a new way, lets get started!
Friday, July 3, 2009
We talked about Amanda's other diagnosis, Aniridia. We got the notice from the insurance, they agreed to pay for the PAX6 F.I.S.H. test. The most important issue surrounding an Aniridia diagnosis and whether or not she will need renal screening for life, the mutation of the PAX6 gene predisposes those people to renal cancer. We have not called to schedule the blood work yet, preferring to do all three girls at once, and Amanda's one year physical is coming up in a couple of weeks. If the test is negative, then her increased chance of renal cancer is gone. That would mean that our Amanda would more likely have Gillespie Syndrome. Even more rare than Aniridia. One fact remains, Amanda's pupils are huge, they are corrugated and bleed into the iris, she has poor vision, though not dysfunctional. And we have witnessed episodes of nystagmus. Something is going on there, but if it does not threaten her life, I am not going to stress about it.
Because of the nystamus and what seem to be momentary lapses in consciousness, she will also get an EEG to rule out epilepsy. Dr T does not seem to think this is Amanda's issue, but her therapists are concerned, so we will rule this out.
I hold her, love her, feed her, bathe her, she is my daughter, and yet knowing that even the professionals agree with the autism diagnosis makes me incredibly sad. I remember almost two years ago seeing her face for the first time and asking A if she had autism. I looked at her and I KNEW something was missing from her gaze, it was not engaging, it did not connect to the camera, does that make sense? So even two years ago I was concerned about Amanda having autism, but more than anything I wanted to be WRONG about that.
On to the next chapter of her life, she is making progress, and that is what really matters. She is up another pound and is nearly 3 ft tall, she IS GROWING.