Our first stop was the passport office, Amanda now has her Estonian passport.
Next stop was the doctors office; I tried to call the Embassy to get information on a waiver for Amanda's immunizations before we left, but they did not open until 9:00 and Amanda and I had to leave at 8:45. So she received her Meningococcal and Pneumococcal vaccinations, the Hep A will wait until we get home as it was not available here.
Her medical records report that she did have genetic testing to confirm her Down syndrome, they also report that she has/has had neonatal cardiomyopathy, it states: The researchers also found an inborn heart failure-DAP and FoA. The heart failure is clinically compensated, they are no symptoms of cardiac insufficiency. Now I have no idea what DAp or FoA are, they are not typical western medical terms.
Amanda will definitely need a full cardiology exam to determine the extent of her heart defects, but it surely is not what we had been told or read about her previously. Her information said she had surgical correction and was stable, Amanda has never had any surgery. This is why it is important for all of us adopting to realize that information about children can be sketchy and/or inaccurate. Still, we accept our new daughter regardless of what these reports indicate, and will have to get a true picture of her health issues once home. Could this be why she is so tiny and frail?
Please pray for our little Amanda, I am now nervous about her flying. Andrea has lent us a portable pulse oximeter which will be invaluable for the trip back to Tucson. i have seen nothing to indicate she is struggling, and her medical examination did not, so we hope for the best possible outcome.
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